Unless you follow me on Facebook, you may not be aware that we’ve been battling an illness with my son for the past year and a half. He’s missed a year of school and it took us a full year to get a proper diagnosis. My son, Tommy, has Amplified Pain Syndrome – a type of Fibromyalgia. There are only 3 programs/hospitals in the country that treat his special form of sickness and one happens to be in Kansas City, which is just 2 hours from us.
After meeting with a ton of specialists a while back, my son got accepted into the special program to treat Amplified Pain Syndrome at Children’s Mercy Hospital in Kansas City. This program is effective and has an 85% success rate of getting kids back to a normal life, though my son is young for the program (11). The average age is 14.
For the past two weeks, I’ve been home with my two daughters and my wife has been staying with my son in Kansas City. We get to stay in The Ronald McDonald House. I left yesterday to return to Kansas City with my son and I’ll finish out the last two to three weeks here in KC with my son and my wife will be back home with our daughters.
This is an extremely tough time for our family and we hate seeing our son in so much pain. He does intense physical therapy from 7:30am to 4:30pm every day. It’s brutal and he can barely walk due his soreness. It’s like going on The Biggest Loser.
Please pray that God would strengthen, sustain and provide for us as a family over the remaining two to three weeks and pray that God would fully heal my son Tommy. Thank you for your prayers.